Tuesday, July 17, 2007

Stigma of Intellectual Disabilities

I've been reading quite a bit from disability studies over the past couple months, and I was thinking about the lack of representation there is for intellectual/cognitive disabilities. Physical disabilities and mobility disabilities are covered. But, little is often covered in books on intellectual disabilities.

And, I think there's even a stigma and abandonment by the disability studies community in regard to the intellectually disabled. I said it. There. There is so much stigma against the physically disabled as being "inferior" and ignorant, that there is almost a shame--so little that wants to be said--about the intellectually disabled because it might reinforce or draw attention to those who represent the "reality" for some. Look at the program for the national Disability Studies conference in 2007--not ONE paper or presentation on autism. Not one. There was a entire panel at least at 4C's on autism in the classroom. But, at the national convention for disability studies--not a single one. I checked. And, in many of the books that I've read, there are chapters devoted to physical disabilities of various natures, but if there is a chapter on intellectual disabilities, it's just that a chapter.

I think disability studies are abandoning the intellectually disabled in a way. Here's why:

Linton mentions throughout her book, as do others, the necessity of the disabled to contribute to scholarship on disability. Couldn't agree more. Yes, the disabled need to have the opportunities to contribute about themselves.

But, like it or not, those without disabilities do not carry the ethos of those with disabilities to contribute scholarship on the issue. Ethos really belongs to the disabled.

However, if I (as a yet-not-disabled woman) do not contribute to this conversation, who will "speak" for Tobey? Who will "speak" for the nonverbal, intellectually disabled if not for the NT, non-disabled?

By limiting "who can speak and for whom" to just the disabled, the disability movement is ignoring a large group of people who can't speak up for themselves.

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